FAMILY EXPERIENCE IN HOUSEHOLD CARE FOR CHILDREN WITH SPECIAL NEEDS OF HEALTH

Authors

  • Kamilla Milione Nogueira Reis Universidade Federal de São João Del Rei. Divinópolis, Brasil.
  • Gabriela Vilaça Alves Universidad Federal de São João del Rey. Divinópolis, Brasil.
  • Thaís Araújo Barbosa Universidad Federal de São João del Rey. Divinópolis, Brasil.
  • Gabriela de Oliveira Lomba Universidad Federal de São João del Rey. Divinópolis, Brasil.
  • Patrícia Pinto Braga Universidad Federal de São João del Rey. Divinópolis, MG, Brasil.

Keywords:

Chronic disease, child health, caregivers, family nursing

Abstract

Objective: The objective of the research is to analyze the family’s experience with home care for children with special health needs (CRIANES). Method: This is a qualitative study, which analyzed 134 records at a philanthropic institution in a district of Minas Gerais and ten semi-structured interviews were performed to families of children with special health needs. Data analysis was performed using the content analysis proposed by Bardin. Results: The results indicate the complexity underlying the care provided to children with special health needs and it was also possible to identify an overload that falls on the primary caregiver. Conclusion: The importance of effective implementation of public policies for this group of children is evident and the need for the strengthening of the social and support networks to facilitate access and timely use of the services in order to improve the quality of life of the children with special health needs and their families.

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Author Biographies

Kamilla Milione Nogueira Reis, Universidade Federal de São João Del Rei. Divinópolis, Brasil.

Licenciada en Enfermería por la Universidad Federal de São João del Rey. Divinópolis, Brasil.

Gabriela Vilaça Alves, Universidad Federal de São João del Rey. Divinópolis, Brasil.

Licenciada en Enfermería por la Universidad Federal de São João del Rey. Divinópolis, Brasil.

Thaís Araújo Barbosa, Universidad Federal de São João del Rey. Divinópolis, Brasil.

Licenciada en Enfermería por la Universidad Federal de São João del Rey. Divinópolis, Brasil.

Gabriela de Oliveira Lomba, Universidad Federal de São João del Rey. Divinópolis, Brasil.

Licenciada en Enfermería por la Universidad Federal de São João del Rey. Divinópolis, Brasil.

Patrícia Pinto Braga, Universidad Federal de São João del Rey. Divinópolis, MG, Brasil.

Doctora en Enfermería. De la Universidad Federal de São João del Rey. Divinópolis, MG, Brasil.

Published

2017-12-13

How to Cite

1.
Nogueira Reis KM, Vilaça Alves G, Araújo Barbosa T, de Oliveira Lomba G, Pinto Braga P. FAMILY EXPERIENCE IN HOUSEHOLD CARE FOR CHILDREN WITH SPECIAL NEEDS OF HEALTH. Cienc enferm [Internet]. 2017Dec.13 [cited 2024Nov.23];23(1):45-5. Available from: https://revistas.udec.cl/index.php/cienciayenfermeria/article/view/393

Issue

Section

Investigaciones